Come along with me. Thanks to Myasthenia Gravis I do not walk. Heard of it? Not I until my ophthalmologist diagnosed me with it. After researching it, I found what I needed – remission is possible! I am going to live my days of IVIG treatments on my Road to Remission right here before the world, be they good days or bad, bright or sunny. The Myasthenic. The Ragdoll. Me. *MY* Myasthenia. Please join me.
.....First of all, where do all these things fit in? First of all, colored pencil colors..... fun sharpening 120 colored pencils! Then I'm running my Internet with my cell phone...so smoothly.....My feet look like they are about to burst with deep creases running through them, with minimal walking causing extreme pain (right Pat?). .....228...My current blood sugar after a good diabetic dinner two and a half hours earlier. ..... Antibiotics for the continuing UTI, and Sleep, mooooore sleep.....all day I've slept uncontrollably. While changing meds, I'm having to tritrate the one I was taking while going back on the previous one, so two of the same kind, both of which can cause drowsiness. You have that? I understand what I was trying to say, and that is what is important I guess. :-) On top of all of this, is my visual impairment from the MG. It is soooo bad now. I can barely see the monitor itself in front of me. I just keep pulling it closer and closer to me, memorizing more things on it as I go, double vision, what it feels like, rather like learning to type by touch.....each finger so many places to the right, left, up, down..... you know, just by feel. I just read that description, and it sounded crazy so I do not expect you to understand; guess you have to be here, experiencing it. Anyway, off I go! More sharpening pencils, and doing some drawing, practicing reaching around the keyboard.
From growing up in the 40s and 50s on the banks of the Mississippi River in Helena-West Helena, Arkansas, I traveled the world in the 60s and 70s, courtesy of husband Jim’s Air Force career, then we retired back home in Arkansas. . . Blytheville, AFB. I have had a full life with three children, four grandchildren, four great-grandchildren with a fifth one due in August. Stick around. The road might get rocky at times, but then, that is LIFE, and Life Goes On, One Day at a time, One Step at a Time.
Myasthenia Gravis Foundation of Arkansas Mission Statement
MISSION STATEMENT
Of Myasthenia Gravis Foundation of America, Arkansas Chapter is the conquest of Myasthenia Gravis through programs of research, education, information, and patient servises to improve the lives of all people affected by Myasthenia Gravis.
"We will not concede until Myasthenia Gravis is only a memory".
Followers
Ashton Sears, a helper he will be.
Their shirts say "Brothers for Life"
It's 4 the Kids (Shown Julian Avery)
Kennedy Garcia - Downs syndrome and a leukemia survivor! Yay Kennedy, you GO girl!
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