Monday, December 24, 2007

Myasthenia Gravis - where's my vision this morning?

It is 5:30 a.m. I've had my morning 60 mg of pyridostigmine thirty minutes ago. I should be able to see by now. But I can't. Hey, it's Christmas Eve so the green font. I'm a graphic artist so there is no telling what I'm liable to come up with. Won't be much without vision. I have been sitting here working on a photo of Ashton and me, and there is a limit as to what you can do if you cannot see clearly. Is the blur on purpose, or is it because of the Ptosis.

My ophthalmologist says I will not go blind with MG, but what good does 20/20 vision do you if you cannot open your eyes enough to see through them. Usually my vision, read that muscle control, is better following an IVIg treatment, but it has not been so thus far with this one. My neurologist says it takes time. It's always give it time. Time. Time. I've been giving this disease time long enough unknowingly. Now I have to give the IVIg time to do its thing. Time. Time. It is even Time on the Road to Remission. We experiment here, there, whatever. But I have to believe. In the midst of it all is Hope and Belief. Without those there would be no use even trying.

2 comments:

Anonymous said...

Hi. I have MG, too. I live in West Tennessee. I belong to a GREAT online group. Here is the link:
http://health.groups.yahoo.com/group/bettesmyastheniagravissupport/

I cannot get your email link to work, so if you would like to contact me, here is my email addy: teacherpal1@yahoo.com. (((HUGS)))

ragdoll said...

Thank you. I have checked out the Yahoo site, and sending you an email. I am just getting started in this and do not have it all together yet.

Billie