Down the road in 2008.... how much awaits?

This is the morning that I put my foot forward on this road this new year. Actually, the first one with a sure, definite purpose as far as the Myasthenia is concerned. Jim and I have it figured that I go back to the hospital on the 11th; that is our tentative date so far unless the doctor or hospital changes it, as they did last month. "Lackluster morning" seems a good description around here this morning. Jim has the peas on cooking, and is over in his chair at his computer; I am here on my bed doing this, making a list of things I need to do in reference to this blogging. Writing is only a "sometime" thing, and I have to use it whenever I have it. I'm expecting word that it wants to break away from the pen to take flight into that bit of sunshine beyond those front windows. My bed faces it, and I admit it does look inviting. It just takes so much effort to get dressed, and by that time, I am too tired to go. Maybe I'll create my own sunshine here, learning, writing, blogging, scanning pictures, having a good time, especially since it is so very cold outside, and getting even colder tonight, down to 18 degrees.

Okay, we've gotten this day off with a BANG! Literally!! Twelve midnight we were welcomed with some very loud pops, probably firecrackers, right outside out windows. I was watching the time on my computer; Jim was asleep upstairs. It woke him, and made me jump. That went on for about five minutes, only outside our windows. Hmmm..... a special welcome to 2008 it seems to me. Well, thank you, whomever you are. Mighty nice of you. I am happy to be here on January 1, 2008. ;-)

Off now to check out the Cotton Bowl. Have a good day each one of you. Hopefully able to be back later.

Billie
Striving for a world without Myasthenia Gravis

Doctors and Hospitals Rule

Finally got that first one posted! How exciting! I think I learned a thing or two so that it will not be that difficult from now on. Now on to this morning's news.

This is the world of the living at the whim of doctors and hospitals and with chronic diseases.

We just received a call from the neurologist's office, telling us that I am to go to the hospital tomorrow morning, Friday, to begin my IVIg treatment. *IF* all goes well, I should be back home by mid-week.

There will be four infusion bags spread over four days. It is the side effects that we wrestle with, and this time we plan to try administering it differently. In addition to the four days (it has been three days previously), we plan to slow the drip to 40 cc/hr whereas the last time I could not take it the least bit higher than 50 cc/hr when my head would begin to feel like a cannon going off inside of it. Once they start, it takes at least a couple of weeks before they subside.

It seems harder for me to get about to finish getting ready to go. It is not a nervous feeling I have, but I am not comfortable either. There for so long I was running back and forth so frequently I didn't have time to get settled in at home. Now I've been here for two months, and I do not want to leave, yet I am so anxious to get the treatment going. I will feel SO much better afterwards I will get all perked up when I get back to my floor at the hospital, too. They are really a swell bunch of nursing staff.

I take my laptop to the hospital with me, and will be writing and posting from there. How much my meds keep me knocked out will determine how much I get to write. I am also working on a page at CaringBridge in conjunction with the Myasthenia Gravis Foundation of America. Hopefully, I'll be able to get on with that since I finally figured things out here.

That's it! I have put it off as long as I can. I am just rambling now to keep myself from having to get started on completing my packing.

'Ragdoll' Billie